I've been gone for a while (from bloggerland). Not because I was actually doing anything, but because I have been in so much pain with this nerve thing, I haven't felt like doing anything. BUT, I feel like maybe, just maybe, these new drugs MIGHT be kicking in. I am still in a lot of pain, but it's changing, so I think that might be a good thing. My skin also looks better too. And I slept, for more than 1 hour in a row last night.
This ordeal has been exhausting. Mainly mentally. I feel like I am losing my mind trying to get relief. I would rather go through breaking my ankle and surgery again any day over this nerve pain. Hour for hour, nerve pain has been so much worse.
And, since I am still in bed for most of the day, I have had nothing to do but read. And reading about horrible things like chronic nerve pain, and scaring myself to tears is what I have done. Since nothing seems to be giving me relief, I've been trying to find out what can be done next.
We went to the ER again on Weds, after a referral from my GP, but they turned me away! The on-staff anesthetist only treats admitted patients. So I waited and cried in the ER for 3 hours for some doctor to tell me this. I know, because this problem is MY problem, I find it extremely important, but I do feel like no one is taking me seriously about this pain. Anyhow, I got ANOTHER referral from the ER doctor, and now I wait.
I wait for an appointment with the "Pain Clinic", who, at worst case, is a year behind the people who are asking to be seen. This is because opiate abusers can only see a pain doctor to get thier drugs for their imagined pain. This means people with real pain, maybe arthritis, or what have you, wait a year to be seen by a doctor. It makes me cry. I cannot imagine being in pain for a year, because of drug addicts!
If my pain is not treated soon, there is a possibility it will become chronic. The good thing about my pain, neuropathic pain, is that it IS serious, and I will be seen soon. But "soon" is all I can get out of the receptionist at the pain clinic. My GP recommended, that if no one has seen me by next friday, when I have my appointment with my ortho specialist (from surgery), that I should push to get seen by the pain clinic that day, or push to get re-admitted into the hospital. Fun times. I have about another 8 weeks to get this sorted, before there's a possibility for it to become something permanent.
These last 4 weeks have been the most horrible in a long time. I keep having "light and the end of the tunnel" moments, only to see another tunnel coming up. I will pleased as punch when all this recovery business is done. My REAL injuries are healing up nice and fine. And I am exercising my ankle as much as I can every day. By next friday I will hopefully have good news from the Dr's, and some real physio to begin on.
I'll try to post some fun and interesting things next...too much doom and gloom lately.
I am too uncomfortable to stay long, and back to bed I go...)